Joint European Program for Rare Diseases Webinar

The European Joint Program for Rare Diseases (EJP RD) is holding a webinar on December 15 entitled "Get to know the European Program for Rare Diseases". Participation is free but registration is required.

The programme brings together more than 135 organizations from 35 countries, with the aim of creating a sustainable ecosystem and enabling a virtuous circle between research, healthcare and medical innovation. Portugal is represented by the Ministry of Science, Technology and Higher Education, through the FCT, and by the Ministry of Health, through the Dr. Ricardo Jorge National Health Institute (INSA).

The need for greater coordination and national alignment with this program led to the creation, in 2020, of the Portuguese National Mirror Group (NMG-P) of the EJP RD, which is coordinated by INSA in collaboration with FCT and the Directorate-General for Health (DGS), and also includes the National Commission for Reference Centers (CNCR), the Union of Rare Disease Associations of Portugal (RD-Portugal), Orphanet Portugal and the Agency for Clinical Research and Biomedical Innovation (AICIB).

One of the tasks of the NMG-P group is to disseminate the EJP RD and the opportunities and tools that are of interest to the national rare disease community (funding, training actions, mentoring, platforms and others), in order to increase the participation and empowerment of researchers, clinicians, patient organizations and national companies in this area.

Program and registration here.